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Become a Member of Talk About Sleep

Meet Your Chat Hosts

Talk About Sleep launched in 2000 and has been successful in creating a caring community for all those looking for information and support regarding their sleep health and sleep disorders. One very special segment of our support community is our online chat program which is just one of the free services offered at Talk About Sleep. This valuable service would not work without the dedication of our volunteer chat host team. Read more about our chat hosts

TAStracy

Location: Minnesota
contact TAStracy

TAStracy is a sleep apnea patient diagnosed in 1989 with mixed apnea (both obstructive and central apnea). She is successfully treated on BiLevel. TAStracy recently underwent gastric bypass surgery which cured her Type 2 Diabetes, but not her sleep apnea.

Tracy has many years of personal experience with therapeutic compliance issues to share and encourages you to join in the evening chats at Talk About Sleep. Read TAStracy's story

Tracy

TASshazzz

Location: New York
contact TASshazzz

TASshazzz is a Narcolepsy patient with Cataplexy. She was diagnosed in 1989. She is treated with medication.

TASshazzz is a charter member of the Narcolepsy Network and has participated in several research projects conducted at Stanford University's Center for Sleep. Read more about TASshazzz

 

TASshazzz

TASmali

Location: California
contact TASmali

TASmali was diagnosed with Narcolepsy/Cataplexy in 1984 at the age of 22.

Living near the Stanford University Sleep Disorder Center has allowed her to not only be involved with a number of narcolepsy clinical research studies over the years, but also has provided the opportunity to volunteer at and interact with the specialists at the Center for Narcolepsy Research. Read more about TASmali

 

TASmali

TASkat

Location: Illinois
contact TASkat

After years of snoring, TASkat was finally diagnosed with Obstructive Sleep Apnea in the spring of 2000. She is currently being treated with an auto-titration device after trying CPAP and a mandibular advancement device.

She still has some problems with hypersomnolence and continues to look for answers to address the excessive sleepiness.

 

TASkat

TASjoe

Location: Pennsylvania
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TASjoe was diagnosed in 1999 with moderate to severe sleep apnea and restless legs syndrome (RLS). He is 100% compliant on CPAP and "loves it"!

Prior to his diagnosis and CPAP use, TASjoe was sleeping 12-17 hours a day and suffering from depression, memory problems, GERD and painful leg cramps.

TASjoe is a coordinator for the Chester County, Pennsylvania AWAKE group as well as a TAS chat host. TASjoe will continue helping his fellow "hoseheads" realize the importance of becoming CPAP compliant. Read more about TASjoe

 

TASjoe

TASquacky

Location: Florida
Contact TASquacky

TASquacky was diagnosed in 2003 with UARS and primary snoring. She is successfully treated with CPAP and is 100% compliant.

TASquacky is a mother of two, teaches Special Education and is a preacher's wife. She enjoys helping people and wants to help other hoseheads become 100% compliant with their treatments. She lives in Florida. Read more about TASquacky

 

TASquacky

TAStony

Location: Kansas
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TAStony is a sleep apnea patient successfully treated with CPAP and heated humidification since early 2002.

Tony's wife, who had noticed an abrupt stop and start to his snoring, was instrumental in helping him obtain his diagnosis. Tony is enjoying the benefit of CPAP which gives him a good night's sleep.

 

TAStony

TASokie

Location: Oklahoma
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TASokie was diagnosed in June 2000 with severe obstructive sleep apnea. Although familiar with the term apnea, it was only on the Internet that she found a full description of the many symptoms of untreated apnea, and knew it was the answer to her health concerns.

Since her successful treatment on CPAP, her husband, sister, brother, and two sons have been diagnosed and are using CPAP. Other relatives have symptoms, but remain undiagnosed. She is so thrilled with the amazing difference CPAP has made in her life....She tells everyone! Five friends have been diagnosed and are enjoying life with CPAP. Ten people are living happier, healthier lives because of sleep disorder awareness! Read more about TASokie

 

TASokie

TASpanther

Location: New York

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Taspanther has been diagnosed with narcolepsy with cataplexy since 2004, however she held a diagnosis of idiopathic hypersomnia, with strong suspicion of narcolepsy, since her first overnight sleep study in 2001.

Taspanther hopes to help others communicate effectively with their doctors in order to improve quality of life through personalized effective treatment.

 

TASokie

TASkarma

Location: Michigan

Email TASkarma

TASkarma was diagnosed with Narcolepsy w/Cataplexy and Restless Legs Syndrome in 1990.  She was diagnosed with Fibromyalgia in 2006 and after trying many medication regimes for her sleep disorders she found success with Xyrem to help control her challenges with narcolepsy including excessive daytime sleepiness, sleep paralysis, hypnagogic hallucinations and cataplexy as well as relieve her fibromyalgia symptoms.  She appreciates the support from her understanding husband and three children.

 

TASkarma

TASclover

Location: Indiana

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TASclover was diagnosed with Narcolepsy in 2003 after many years of HH, excessive daytime sleepiness, and sleep paralysis, but did not know that lifestyle wasn't "normal." After finally finding the "right" medicine combination, following a strict nap schedule, and alleviating major stress from her life Clover has regained much of her energy and is now ready to give back to the sleep community by helping others with coping strategies. She is thrilled to a part of this thriving organization.

 

TASclover

TASamina

Location: Florida
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Amina was diagnosed with narcolepsy with cataplexy in 2005.  Amina believes that support from family and friends have been the most important factor in her ability to cope with the effects of Narcolepsy.  Amina believes that finding TAS and joining the chats has been the best form of "medicine" so far, (with no co pay or side effects!) and she hopes to help others by providing support and a listening ear.

TASjane

Location: New Jersey
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TASjane has multiple sleep disorders. Her obstructive sleep apnea was diagnosed in 1998 and she is on CPAP. Jane suffers with EDS. She also has PLMD and Fibromyalgia which are treated with medications. TASjane has an interest in complementary therapies. Read more about TASjane

TASbrenda

Location: Virginia
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TASbrenda was diagnosed with moderate to severe sleep apnea in October of 2003, after she fell asleep at the wheel of her car on the way to work one morning, destroying 2 utility poles. She was unhurt, and grateful no one else was hurt, since this happened in a school zone. Hypopneas are her primary problem, and she is 100% compliant on Bi-level PAP.TASbrenda freely discusses sleep apnea with those around her, and as a result, one person has been diagnosed, and is also 100% compliant with her treatment. She has the support of a wonderful husband and one grown son.

TASsleepy

Location: Michigan
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TASsleepy was diagnosed with Idiopathic Hypersomnolence in 1989 and was treated with medications until 1994. In July 2000, it was suggested during a consultation for another problem that she might have sleep apnea. A PSG in August 2000 showed that in addition to Sleep Apnea she also had RLS. She is 100% compliant on BiPAP at pressures of 15/5. Her RLS is currently treated with iron supplements to increase the serum ferritin levels.

TASramon

Location: Northeast Ohio
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TASramon was diagnosed after several years of extensive tests, trials, doctors, etc. with Obstructive Sleep Apnea and Narcolepsy without Cataplexy. He is compliant with CPAP and grateful for it but has not had success with medications for Narcolepsy. TASramon says he is married to the most wonderful and understanding woman in the Universe and has two bright, talented and understanding adult step-daughters. He is retired on disability from the Fire Department due to his Sleep Disorders.

TASpat

Location: Georgia
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TASpat is a sleep apnea patient, diagnosed in August, 2001. She has been on CPAP since September 1, 2001, and is 100% compliant (after a rather rocky - but determined - start). Her initial complaints of tiredness went back to the mid80's but it wasn't until she read an article on sleep apnea in a magazine she picked up at the supermarket that she figured out what was wrong and was able to help her doctor diagnose her. She is very grateful for cpap and how it has restored her life. She was also diagnosed with fibromyalgia in 1988 and learned first hand about trigger point injections and nerve blocks, neither of which she personally recommends. Pat is the mother of a grown son and is a grandmother!

 

 


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