Reply To: Xyrem – does it cause Alopecia AND diffuse hair loss?

Add new topic

Home Forums Let’s Talk About…Narcolepsy Xyrem – does it cause Alopecia AND diffuse hair loss? Reply To: Xyrem – does it cause Alopecia AND diffuse hair loss?

#168318

runningfox
Member

Thanks irishvamp, it’s reassuring to hear from someone experiencing the same thing. This is really depressing and that can’t be great for my hair loss either. Since starting thyroid meds, my hair has started getting thick and long for the first time in my entire life. It’s super obvious to me, maybe because I was so exited about having nice hair for once. I had my mom look at my scalp the other day and she said it looked normal aside from it looking like there was thin/sparse hair growth. That really didn’t help me stop thinking about it.

How much Xyrem do you take?