Detroit area Narcolepsy Support Group?

Windexgirl · Joined: 22 Jan 2005 Posts: 6

Hehe, I didn't notice this forum, so I already posted in the Narcolepsy Forum... oh well, can't hurt to post again!

I was hoping that fellow Narcoleptics from the metro Detroit area would be interested in forming a support group... Anyone interested?

dogroxanne7 · Guest

I am in the Detroit area looking for a Narcolepsy support group.....what area are you from?

Are you still interested in a group?

Windexgrrl · Joined: 18 Oct 2004 Posts: 15

Cool - I thought nobody was going to reply!!

I currently live in the Royal Oak area. Where are you?
Do you know of any other PWN that would be interested?

Kookamunga · Posted: August 13 2006 Post subject:

I live in Warren, and I have N as well! I'd love to be part of an area support group!

Tracy · Joined: 26 Jul 2001 Posts: 2019 Location: Minneapolis area

Hi all;
I have a gentleman from the Rochester, MI area who is looking for a support group. I am not familiar with your state....is Rochester near any of your cities?

Please email me if you have information on N support in or near Rochester...thanks so much!

Tracy

tnasca@talkaboutsleep.com

JeanneBmi · Joined: 26 Mar 2007 Posts: 3

There are tentative plans to start a Narcolepsy support group in the Detroit Area through the DMC sleep labs.

We are starting an awake group soon and as soon as this gets under way they will look at Narcolepsy and perhaps RLS.

I can put you in contact with the people organizing the group, THey are looking for volunteers to help organize the group.

email me at TASsleepy@talkaboutsleep.com
Jeanne
(TASsleepy)[/list]

sleepydreamer2 · Posted: May 01 2007 Post subject: re support groups

I cant drive to the dmc is there one going to be started like downriver I live in the Flat rock city and theres no way driving to Dmc cause of gas wise..... My truck is a gas guzzler!!!

Please let me know!!!

Laughing

Mary

sleepydreamer2 · Posted: August 26 2007 Post subject: re support groups

wow i was the last to post!!!!

Well I am going out with someone that lives in the Pontiac area, my how things change in 3 yrs. So Did any one get a support going around here??? And he come with me to understand hes asking me a lot of questions Im answering them but maybe it would be better to get feed back from other people and I would also have a ride lol..............

Usually he brings up to his house from mine because how my truck is on gas!!!!

Where is Leanawae county???

Sleepy

Windexgrrl · Joined: 18 Oct 2004 Posts: 15

Hello all,

Sorry to have "fallen asleep" on this board for a while, it happens! Wink

I e-mailed Tracy and Jeanne requesting the contact info for the Rochester, Michigan person looking for a support group as I now live in that area. I work in Downtown Detroit (talk about a gas guzzling truck!!!!), so would also be interested in being put in touch with DMC sleep labs to initiate something in the Metro area.

If anyone else in the Metro area wants to be involved please don't hesitate to post. I promise I won't go a year in between responses! Maybe a couple days! Smile

~ Windexgrrl

SleepDog · Joined: 08 Nov 2004 Posts: 173 Location: Ohio

I'm going to be moving to Ohio about an hour from Detroit. I'd love to be part of an N group after my move!

Dani5676 · Joined: 12 Jul 2005 Posts: 39 Location: Metro Detroit Area

Okay, I know the thread on this post is forever old, but I NEED a support group. I'm in Metro Detroit and live very close to Warren. I'll try the e-mail addresses above, but I'd love to hear more about these support groups.

Thanks,

Danielle

Windexgirl · Joined: 22 Jan 2005 Posts: 6

Hi Danielle,

Sorry, fell asleep for a few years! I'm still in the Detroit area, actually not far from you. I'd still be interested in forming a group, or at least exchanging contact information. I know it's not easy to keep up on commitments with our disorder - one of the most frustrating things to me!

Jules

SomniCat · Joined: 03 Jan 2011 Posts: 21 Location: Michigan

Hello!

I must admit, I don't have narcolepsy. I do have Idiopathic Hypersomnia and am desperately looking for a support group. I've heard from other IH people that N support groups and forums are a great place to start since the two disorders are so similar.

I'm currently a student at Oakland University (Rochester) and I'd be willing to drive for a support group. Please let me know what I can do to help!