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sleepyhead38
Joined: 02 Apr 2009
Posts: 89
Location: southeast
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 Posted: March 11 2010 Post subject: is narcolepsy an 'organic brain disorder'? |
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| I've been looking into disability and I'm wondering how narcolepsy qualifies. The only thing I see is the organic brain/mental disorder. |
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sleepyhead38
Joined: 02 Apr 2009
Posts: 89
Location: southeast
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| Posted: March 12 2010 Post subject: |
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Hmmm...well i'm trying to figure out where narcolepsy fits in with SS disability and I thought someone would have a few answers.
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Cindy T
Joined: 18 Aug 2005
Posts: 2506
Location: Spokane, WA
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| Posted: April 11 2010 Post subject: Re: is narcolepsy an 'organic brain disorder'? |
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| Quote: | I've been looking into disability and I'm wondering how narcolepsy qualifies. The only thing I see is the organic brain/mental disorder.
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Narcolepsy qualifies under "cental nervous system disorders", however "Narcolepsy" isn't specifically listed. Having Narcolepsy doesn't necessarily qualify one for SS disability automatically. Severity of your symptoms and how it effects your quality of life and activites of daily living is what they look at.
Narcolepsy is often mistaken by others as a mental disorer. However, it is actually a physical disorder of the central nervous system.
I hope this is helpful. 
Cindy |
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sleepyhead38
Joined: 02 Apr 2009
Posts: 89
Location: southeast
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| Posted: April 11 2010 Post subject: |
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Thank you for your answer.
I was diagnosed a year ago March. My doctor said that I was the most positive case she had ever seen.
I tried xyrem but had to stop taking it because I couldn't handle the side effects. I tried provigil, but it didn't work at all.
I started taking Ritalin last June and it was really working good.
I've just found out that the Ritalin trigger Raynauds Disease, which is in my family history so it isn't surprising that I have it. My cardiologist is the one that figured out the problem.
I had seen my primary care doctor and 3 rheumatologist and none of them knew that it was the vasoconstrictor (ritalin) that was causing the Raynauds.
I have to go back to my sleep doctor now about my meds, but I know there is nothing else that will work for me.
My narcolepsy is so severe that I truthfully can't function without the medication. |
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