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quitting Xyrem, seroquel and CES device-anyone?

 
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cyrusromeo



Joined: 09 Aug 2011
Posts: 9
Location: United States

PostPosted: August 04 2012    Post subject: quitting Xyrem, seroquel and CES device-anyone? Reply with quote

I've had severe insomnia for over 20 years, it came on suddenly and a couple of months later I was bedbound with chronic fatigue syndrome. Unable to function beyond crawling to the bathroom and struggled to eat. Have never been a napper, no matter how sick and exhausted I am, need some kind of drug to sleep and feel I've done it all. Illness has been up and down, severe crash this last year and was approved by my specialist for Xyrem 2 years ago. Worked beautifully for a long time and now it seems to have really lost effectiveness. First dose, I may be up an hour later. 2nd dose, 3 good hours. It just isn't enough and I've decided to go off it. (Lots of tweaking and trying different things). Think it may be contributing to some depression, hard to tell when I'm pretty sick with the cfs flare. Anyway, Ambien, all those are not an option for any length-it seems the Xyrem has increased my tolerance a great deal when they used to work. I'm going to switch to Seroquel. Tried it last week and while I'm not looking forward to the 'switchover' hope it will work.
Any experience w this? Also, I've read ads for CES devices that are for insomnia and found almost nothing here. There is one that offers a full money back guarantee. Anyone tried it?
This is a long and varied post, my apologies. I've read some incredibly helpful and insightful posts (somehow my membership went inactive and couldn't post) and I'm so disappointed that the Xyrem just isn't working.
ps Had a script for Trazadone and the folks at Jazz called me, my doctor and wouldn't refill the script until they confirmed with my doc I wasn't taking it at the same time. I know a lot of folks combine meds and I never knew there was an interaction, never mind it came up on their radar with so much concern?
Whew! There it is, that's where I am...
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cyrusromeo



Joined: 09 Aug 2011
Posts: 9
Location: United States

PostPosted: August 05 2012    Post subject: Reply with quote

Have I posted this in the wrong section? I'm wondering if there is a way to take one dose of seroquel and one of Xyrem. I know taking them at the same time (for me) is disastrous. Thinking if I start the night w Xyrem, then Seroquel, one will be out of my system before the next. I wish I could start the night w seroquel, then take xyrem but seroquel seems to be in my system too long.

Anyone have experience? My main issue is that the 1st dose of xyrem doesn't work well but the 2nd one does.
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k horsley



Joined: 11 Mar 2008
Posts: 308
Location: califorina

PostPosted: August 05 2012    Post subject: Reply with quote

try the narcolepsy site
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