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confused about what to do

 
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snoopy



Joined: 07 Aug 2001
Posts: 75

PostPosted: October 23 2001    Post subject: confused about what to do Reply with quote

a sleep study center in virginia is interested in entering me in research for xyrem but everything I have read it is the same thing as or is GHB and the information I find on both is very disturbing, but my doc has not been able to find a med that helps my cataplexy or my narcolepsy and I would really want a more active life. the lady at the sleep center says the xyrem puts you into a deeper sleep at night so I could have more restful sleep with less REM which in turn would give me more battery life till I need sleep but. the type of drug has a bad rap. would should i do input appreciated...Good Day...
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IBC



Joined: 26 Jul 2001
Posts: 307

PostPosted: October 28 2001    Post subject: confused about what to do Reply with quote

Hey Snoopy!

Yes, there is a lot of negative information out there about Xyrem (GHB). As with any prescribed drug it can be used for the wrong things, Xyrem is no exception. For a person with N and C, it can be a blessing, put in the hands of someone who wants to abuse it, it can be very dangerous!!
To date, there is no other prescribed medication that can provide the relief that Xyrem does for us, I for one would JUMP at the chance to try it!!
As we have learned, each of us are different though, and how our N and C effects each of us is different, so please do keep in mind that Xyrem may indeed effect each of us different....BUT, I have yet to hear one negative thing about Xyrem from one N/C person, not that it has not happened, just that out of all the folks (and there are MANY of them) that have tried or are trying Xyrem...i have heard nothing but praise about it!
I suggest that you type in Xyrem in the search box here on this site, you will find a wonderful source of informaton about it. Also, come and join the chats (again..lol) and talk with others yourself.
It is good to question these things, it is good to become educated in these matters!

IBC
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