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I will never forget how bad I felt that November day in 2003 when I left the neurologist's office with a pamphlet on sleep hygiene, and blister pack of Provigil samples. I was in shock. I had naroclempsy...narclespy...something I couldn't even spell. I couldn't believe I had a "chronic lifelong neurological disorder"! How could this be? Something was wrong with me and I might have to take pills for the rest of my life! Everything I thought was "normal" was not normal!!
About two months later, as I needed an informative topic for a college class project, I decided to look up narcolepsy. In my internet searching, I came across the website Talk About Sleep, and soon found myself immersed in the narcolepsy message board. As I read post after post, I laughed and cried as I realized that I could have written so many of those posts myself. Finally I had found a place where I could feel at home and share the ups and downs of living with narcolepsy with others like myself.
A few months later, after reading so many posts by others describing the same issues I had: memory problems, hallucinations, confusion about reality and time, I decided to write up a humorous list of what I thought should be criteria for diagnosing narcolepsy. I wanted to help my friends and family understand how narcolepsy affected my daily life, and I figured humor was the best way to approach the subject.
I posted it on Talk About Sleep and since then it has grown into a very large thread with great additions from other people with narcolepsy. Now, whenever I feel like no one in my world understands what I'm going through, I find myself going back and reading through page after page of funny posts. It cheers me up every time. If you have narcolepsy, or love someone with narcolepsy, then these lines are for you. Here is my original post. Enjoy!
YOU MIGHT HAVE NARCOLEPSY IF...
you can use a book to amuse yourself for hours without even opening it.
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