Narcolepsy Acronyms

Add new topic

This topic contains 11 replies, has 10 voices, and was last updated by  RedbAdGE 9 years, 2 months ago.

Viewing 12 posts - 1 through 12 (of 12 total)
  • Author
    Posts
  • #22399

    Arizonaandrea
    Participant

    ATTENTION: We need this to be a sticky!!!

    N – Narcolepsy
    C – Cataplexy
    EDS – Excessive Daytime Sleepiness
    pwn – person with narcolepsy
    pwon – person without narcolepsy
    HH – hypnogogic hallucinations or hypnopompic hallucinations
    SP – sleep paralysis
    AB – automatic behavior
    MSLT – Multiple Sleep Latency Test (tests for narcolepsy measuring how quickly you reach REM sleep when napping)
    Dx’d – diagnosed

    NN or Narnet – Narcolepsy Network, a 501 c-3 non profit organization
    TAS – Talk About Sleep

    We also have ‘lurkers.’ Lurkers can be people who read the posts, but never post anything themselves. But a lurker can also refer to that mysterious, usually evil entity we meet up with during an HH. As in a ‘lurker’ attempted to break into our house, or a ‘lurker’ was in my bedroom, when in fact it’s just part of the hallucination.

    Okay, that’s all I can come up with off the top of my sleepy head. Please add any that I failed to think of.

    #140604

    hugs you always come up with the best.esp. if you can’t spell
    how about CAT ATTACKS for a cataplexy which we do use. how about puting it on the list with no writing like this then just some letters for the different sizes of thing
    g kate[/b]

    #140605

    SleepDog
    Member

    Good idea! Here are some others:
    SOREM-sleep onset rapid eye movement
    PSG-polysomnogram (night sleep test)
    Rx’d-prescribed
    Tx’d-treated
    MWT-maintenance of wakefulness test
    CNS-central nervous system

    #140606

    kimberlyaz
    Member

    Can we make this a sticky please?? I just stumbled through a few pages worth of posts that would have been a whole lot easier if I’d seen this first. Thanks! 😆

    #140607

    Love this – Helps a great deal!!

    Now we need them for the Meds!!

    Copied and pated them to a word Doc I can’t always remember them.

    THANKS!!!!

    #140608

    sassanik
    Member

    bump…

    #140609

    csever01
    Member

    @butterfly2b wrote:

    Now we need them for the Meds!!

    Agreed. I have some suggestions:

    AD = Adderal
    AMB = Ambien
    CX = Celexa
    CM = Clomipramine
    CN = Concerta
    DEX = Dexedrine
    EFX = Effexor
    IM = Imipramine
    KP = Klonopin
    LUN = Lunesta
    RL = Ritalin
    PV = Provigil
    PZ = Prozac
    WB = Wellbutrin
    XY = Xyrem
    ZO = Zoloft

    If anyone can think of any I missed or any that should be changed, post your thoughts!

    #140610

    RedbAdGE
    Member

    I’m trying not to use the acronyms anymore. I realized that the main reason I found this website was because I googled a few phrases such as “Narcolepsy”, “Diagnose”, and “Cataplexy.” Google (and probably other search engines) will pop up with search results that include our posts in the message boards. There are a lot of people out there that do not know about this site and by using the acronyms it limits the search engines ability to include so much information that we have here. Many of the words we abbreviate with acronyms are the very words people are searching for. The more people that find the information they are looking for through Google, the more people will come to this site, register, find the help they need, and become contributors to the forums.

    #140611

    lrdst
    Member

    redbadge- that is an excellent point! In doing my research for symptoms, my own darn post popped up first, lol! At first I kind of thought it was a little bit of an invasion of privacy, but then I realized how deperate for answers I have been to find info for my son. If any of your contributions can help just one person, it is so worth it. That’s very thoughtful of you!

    #140612

    zzzmorris
    Member

    I have a few more.

    Focalin ( FO) and sadly gone now Cylert(pemoline)( CY)

    @csever01 wrote:

    @butterfly2b wrote:

    Now we need them for the Meds!!

    Agreed. I have some suggestions:

    AD = Adderal
    AMB = Ambien
    CX = Celexa
    CM = Clomipramine
    CN = Concerta
    DEX = Dexedrine
    EFX = Effexor
    IM = Imipramine
    KP = Klonopin
    LUN = Lunesta
    RL = Ritalin
    PV = Provigil
    PZ = Prozac
    WB = Wellbutrin
    XY = Xyrem
    ZO = Zoloft

    If anyone can think of any I missed or any that should be changed, post your thoughts!

    #140613

    zzzmorris
    Member

    RLS Restless leg syndrome

    @Arizonahugs wrote:

    ATTENTION: We need this to be a sticky!!!

    N – Narcolepsy
    C – Cataplexy
    EDS – Excessive Daytime Sleepiness
    pwn – person with narcolepsy
    pwon – person without narcolepsy
    HH – hypnogogic hallucinations or hypnopompic hallucinations
    SP – sleep paralysis
    AB – automatic behavior
    MSLT – Multiple Sleep Latency Test (tests for narcolepsy measuring how quickly you reach REM sleep when napping)
    Dx’d – diagnosed

    NN or Narnet – Narcolepsy Network, a 501 c-3 non profit organization
    TAS – Talk About Sleep

    We also have ‘lurkers.’ Lurkers can be people who read the posts, but never post anything themselves. But a lurker can also refer to that mysterious, usually evil entity we meet up with during an HH. As in a ‘lurker’ attempted to break into our house, or a ‘lurker’ was in my bedroom, when in fact it’s just part of the hallucination.

    Okay, that’s all I can come up with off the top of my sleepy head. Please add any that I failed to think of.

    #140614

    RedbAdGE
    Member

    Some of these acronyms are unnecessary. I do not see how they help the site. I refer to my previous post. Please take the time to type out your phrase for the benefit of search engines, new visitors, and for those of us with A.I.S.
    AIS= acronym intolerance syndrome. What? You didn’t already know that?

    Thanks.

Viewing 12 posts - 1 through 12 (of 12 total)

You must be logged in to reply to this topic.

Pin It on Pinterest