Xyrem Side Effects

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This topic contains 24 replies, has 12 voices, and was last updated by  Queen Citrus 7 years, 1 month ago.

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  • #120766

    Sleepmoon,
    😆 You hit the bullseye on that one! Without treatment we most certainly pose a danger to ourselves and others. CNN medical journalist, Dr.Sanjay Gupta, did a special on sleep. In that report, he stated that going without sleep for 24 hours reduces a person’s cognitive and motor abilities to that of a person with a blood alcohol of .080. He actually demonstrated the effects in a experiment in which he performed a number of tasks on a flight simulator. He then stayed up for 24 hrs, after of which he attempted to perform the same tasks on the flight simulator. He totally bombed. We do not have to go a full 24 hrs without sleep to lose our cognitive and motor abilities. The sleep-deprived are not as alert and able as those that get a full nights sleep. In fact, during this report, Dr. Gupta found that he was sleep deprived.

    I would like to read the article you mentioned about PWN and addiction.

    Yorkiemum: 8) BAM! POW! BANG! BEST TKO I’VE SEEN IN A LONG TIME 8) HIGH-FIVE!

    #120767

    yorkiemum
    Member

    realdreamer, you’re right about sleep. I was watching a show where the highway patrol was seeing unusual behavior and even accidents from ‘not drunk drivers’, but sleep deprived drivers. This is as much of a problem as the drunk driver.

    I am editing this an hour later. When I saw some of the posts from TP, something clicked.
    Thought I had read some of that before. When I was rx’d xyrem I did google it and check it out. But I came across some odd web sites. I decided to check again and I found this site.
    Trinka Porrata (TP) has a lot to say about xyrem. (zyrem? my spell check decided it was zyrem)

    Edit again: And this person has been adding links to THIS board and using our conversations as proof that there are ‘side effects’ and problems. They have taken a lot of liberty with other people lives and personal problems.
    I wonder if the TAS owners want their web site used in such a way.
    This is sneaky and I feel a desperate attempt to acquire information that is being misused. I know I am annoyed.

    http://www.projectghb.org/Xyrem.htm

    #120768

    Yorkiemum, the more I think about it, the more I think we should ask TAS’s administrators whether it is proper for TP to use information from our posts on her web site…

    BTW, I found a copy of TP’s resume. Here are some highlights:

    Extensive experience in journalism and photography in high school, including the school newspaper and yearbook and sports and general writing for the Robinson (Illinois) Daily News.
    Also with the Michigan State News, Newsweek Magazine and the Detroit Free Press.

    MICHIGAN STATE UNIVERSITY, EAST LANSING, MICHIGAN
    B. S. Degree, Police Administration and Public Safety/Journalism 1966-1970

    A police journalism degree?! Now that is one strange degree–never heard of such a degree.

    #120769

    I find it very sad that a person in pain, looking for help, is getting hit by all this “GHB is dangerous” nonsense that doesn’t belong on this board! I am truly aggravated.

    Tnjayjay deserves help here.

    I tried Xyrem. Unfortunately, I had an adverse reaction of severely increased bodywide pain and stiffness. I tend to have strange reactions to many meds, though!

    I know this drug is a lifesaver for many with Narcolepsy, Fibromyalgia, and Insomnia.

    I had no difficulty withdrawing from it.

    #120770

    Leca
    Member

    Couple things here… what a particular substance is made from, even if it is a ‘floor stripper’ or a ‘drain cleaner’ does not matter. As a chemist, you only take into account the actual chemical product which is the outcome of the reaction. Even GBL – being an organic solvent, is merely a mild mucus membrane irritatant when consumed straight. Would you be surprised to know that the same acid in your stomach is used for stripping floors and pool maintenance? Well, of course it has legitimate solvent uses, doesn’t make it any less of a drug than tylenol. Bottom line on that – doesn’t matter what it’s industrial purpose is, it’s totally irrelevent if people strip floors with it, it’s stil a chemical which hydrolizes into a drug. It also, but the way, breaks down into less toxic byproducts (CO2 and h20) than asparatame does.

    Frightening ignorant people is awfuly noble of you, and I would point out, you do more damage than good by fear-mongering, the DARE program does the same thing, and your outrageous claims become such that people stop listening to you and make up their own minds. Erowid.org is a far better source for GHB information than any biased crusade-based individual with an agenda.

    Additionally, I’d like to point out, most people who are ‘raped’ and think they were given GHB, likely never got raped with GHB. How many girls have even straight up knowingly lied because they didn’t want to admit they were just drunk, so they just made up a story about the fact that they must’ve been slipped something? How many were given Rohypnol and had others assume it was GHB? I severely doubt the accuracy of your statistics all around because you are not a credible source, and GHB is also out of the blood too quickly to test for it in many cases.

    As far as addicts – as long as there are ANY psychoactive substances, people will take it much too far.

    As far as sleepwalking, G-driving-etc. go… Make up your mind, really. You make one claim that these people go into a coma and can’t be roused (which can be the case on a big overdose) then say they’re off running around driving and doing crazy things. Yeah, I do admit, people can do some crazy crap on G… people do some crazy crap drunk, tripping, high, tweaking…

    You can never have a substance that agrees with absolutely everyone. You’re just sheltered by your demonizing beleifs, and you’re unwilling to listen to reason. The kind of ignorant worthless authority figure that society does not need.

    #120771

    @trinkap wrote:

    I don’t think many people on this list know that Xyrem is just GHB, often called “the date rape drug” though it should only be called “rape drug” or “predatory drug” as it has nothing to do with a date. It is one of the drugs used to commit robbery or rape (male or female victims). The news media created and maintains that the DRD term, despite the reality that “dates” aren’t the real issue.

    Anyone with a history of addiction issues or any mental health issues (especially depression) should avoid this drug. Unfortunately many of the docs prescribing it only know what the drug company has told them. If you are taking it, be sure someone else is around to see what your real side effects are. GHB stimulates appetite for many people. Many who take it (even prescribed Xyrem levels) may sleep walk, sleep eat, sleep cook, sleep drive (just as our rape victims do). It can literally become a custody issue for single moms. It is unlikely you could safely wake up and help a child (or anyone else) in need, hear problems in the house, etc., while on it. You are not safe to drive a car while under its influence, even if “awake.” Be sure to consider that before taking this drug. That’s not even considering the other side effects sometimes reported such as urinating during the night, etc.

    I have worked with more than 1500 GHB addicts in 17 countries (most of them athletes of some degree, including worldclass athletes, who were taking GHB for the purported increase in growth hormone production), and we have seen many suicides in the aftermath of long term GHB use (some after only a few months of use). They and their families go through hell with this drug.

    No matter what you read, GHB is addictive. I know of Xyrem patients who ended up sampling it during the day because of its initial “anti depressant” effect and who ended up doing their whole prescribed amount in a week’s time, then shaking, popping their antidepressants (that they didn’t take during that first week) and shots of alcohol until the next batch arrived. Be very careful NOT to fall into that bag. I realize that people with narc/cat usually work hard at taking their meds carefully, hoping for relief from the condition, not seeking a high, etc. But especially for those being prescribed Xyrem for just narcolepsy or fibro, it is an increased risk. You need to KNOW that it is addictive and DOES have depression risks, etc. in making a decision to use this stuff and in handling it if you do accept a prescription for it.

    Dr. Gleason in NY has been indicted for working for the drug company and “pushing” this drug to doctors in violation of the law and rules for its use and proper promotion of drugs. He went around telling doctors, on behalf of the drug company, what a great product this is……………..the information he was giving out was not accurate. Just be very, very, very careful in considering a prescription for GHB (aka Xyrem). Again, it is very important to have someone monitoring your behavior……..because you will be the last to know how you act under its influence!

    Anyone with a history of addiction issues or any mental health issues (especially depression) should avoid this drug. Unfortunately many of the docs prescribing it only know what the drug company has told them. If you are taking it, be sure someone else is around to see what your real side effects are. GHB stimulates appetite for many people. Many who take it (even prescribed Xyrem levels) may sleep walk, sleep eat, sleep cook, sleep drive (just as our rape victims do). It can literally become a custody issue for single moms. It is unlikely you could safely wake up and help a child (or anyone else) in need, hear problems in the house, etc., while on it. You are not safe to drive a car while under its influence, even if “awake.” Be sure to consider that before taking this drug. That’s not even considering the other side effects sometimes reported such as urinating during the night, etc.

    I have worked with more than 1500 GHB addicts in 17 countries (most of them athletes of some degree, including worldclass athletes, who were taking GHB for the purported increase in growth hormone production), and we have seen many suicides in the aftermath of long term GHB use (some after only a few months of use). They and their families go through hell with this drug.

    No matter what you read, GHB is addictive. I know of Xyrem patients who ended up sampling it during the day because of its initial “anti depressant” effect and who ended up doing their whole prescribed amount in a week’s time, then shaking, popping their antidepressants (that they didn’t take during that first week) and shots of alcohol until the next batch arrived. Be very careful NOT to fall into that bag. I realize that people with narc/cat usually work hard at taking their meds carefully, hoping for relief from the condition, not seeking a high, etc. But especially for those being prescribed Xyrem for just narcolepsy or fibro, it is an increased risk. You need to KNOW that it is addictive and DOES have depression risks, etc. in making a decision to use this stuff and in handling it if you do accept a prescription for it.

    Dr. Gleason in NY has been indicted for working for the drug company and “pushing” this drug to doctors in violation of the law and rules for its use and proper promotion of drugs. He went around telling doctors, on behalf of the drug company, what a great product this is……………..the information he was giving out was not accurate. Just be very, very, very careful in considering a prescription for GHB (aka Xyrem). Again, it is very important to have someone monitoring your behavior……..because you will be the last to know how you act under its influence![/quote]

    Man, this is all a pack of lies! First GHB is an all natural ingredient. The FDA tried to criminalize it by portraying it as a date rape drug in order to get it pulled off of health food stores shelves. THat way they can get a kick back from the pharmaceutical companies for make it a “drug” or so called one. See you cannot patent a natural substance, you can only patent a “drug”. It is found in every living creature. It is a naturally occuring metabolite in the human body. There is enough of it in beef that if the beef got tested for levels it would be adequate enough to show up on a test for GHB. It is found in wine, citrus fruits, beef, pork, etc.
    It is not anymore of a date-rape drug than alcohol. Alcohol has been the number one date rape since the beginning of time! But, is it illegal? No, you can get it at every corner store. GHB does not make a person a rapist anymore than than alcohol. Is every person that consumes alcohol a rapist? No!. Just as a person that consumes GHB is not. What do you think everyone that consumes it says ” Oh, I just consumed some GHB, let me go be a rapist”!. If a person is a true rapist, they will do anything to rape. Go and interview all the most notorious rapist in the country and ask see if you can find just one who used to to attack a person.! The date rape theory is all just propaganda.
    Also, it is not made from paint stripper, it can be synthesized from the organic chemical GBL. But so can Vitamins A, C, E , etc. Xyrem/GHB is the best thing I have ever taken for sleep. It is also the only thing that has ever worked for anxiety. It is metabolized into carbon dioxide and water, which means there are no toxic byproducts in your system.

    What that doctor was doing was no different than any other doctor or pharmaceutical sales rep does. They all pay off the doctor’s to prescribe their drug and it is legal to do so. The pay lobbyist to get all kinds of drugs approved.

    First, the FDA, media was trying to criminalize GHB and saying how bad it was for you now it is approved for medical use. In order for a “drug” to be approved,it has to be deemed safe and effective. So, which is it, safe or is it bad for you?

    #120772

    to TrinkaP,
    Also why don’t you do research on nicotine,alcohol, cocaine, heroin addicts? Do you know why you don’t, because society has given up on these issues, there are so many people addicted to these substances that it is too much, too much hard work. It is easier to brush these under the carpet and pick on a relatively unknown substance so it looks good on paper to say you tackled a few cases. More people die from alcohol and cigarettes every year than all the other drugs put together, but is anyone trying to take these off the shelf? No! Or warn people of their danger? NO!

    #120773

    Somatomax
    Member

    I have been watching this discussion and although I am
    very VERY busy it would be wrong for me not to share
    my insight and experience with this drug…

    In defense of TrinkaP there are many things she is
    right about… very right about. At the same time
    her perspective is very BIASED and LIMITED
    for the following reasons:

    1.) The vast majority of her work with this drug is done
    100% within a negative light (i.e. dealing with addicts
    and rape victims). We will not even address the fact
    she comes from an orientation of a law enforcement
    officer or the reality that many of the addicts were
    using a chemical far different than real XYREM/GHB.
    The statement “GHB-IS-GHB-IS-GHB” (while convenient)
    is erroneous at best. Which brings me to:

    2.) This woman (though well intentioned) has never even
    taken this drug. It’s one thing to work with addicts on this
    drug (or I should say – varieties and variations of it) but it
    it is something else when you have actually used it yourself
    (like me).

    Before I shed light on this whole discussion let me first
    Share what makes me qualified in the light I am speaking.

    A.) I have used GHB off and on since 1991. I have used
    real GHB in powder form back in the days when it was
    only .25 cents a gram and I have also used homebrew,
    homemade and “street” ghb as well. I have used straight
    GBL and just about every analog out there.

    B.) I have used the drug as intended (for sleep) and I have used
    it recreationally. I have also abused it and overdosed on
    it on more than one occasion. I have been addicted myself
    And watched friends get addicted. I have seen it used Responsibly
    and I have seen it grossly abused and Ruin lives. To say
    I am experienced with this drug would be an understatement.

    Since my time is limited let me share the most I can as
    concisely as I can.

    1.) TrinkaP and her perspective come from a REALLY REALLY
    bad place. She deals with rape victims and drug addicts.
    While she is very well intentioned and someone needs to
    do her work (and I respect the heck out of her) she has
    a very EXTREME PERSPECTIVE. Personally, I would agree
    that this forum is NOT a place for her. She is so ANTI
    XYREM it is great and entertaining at the same time.
    But in defense of her she has seen the worst of it.
    However, she has never even taken this drug (let alone
    the street versions of it!). I don’t care how many
    addicts you talked to. If you’ve never taken the
    drug your experience to talk about it is partially
    limited. Having done many, many different forms
    of this drug over the last 16 years I can tell you
    that there is A HUGE DIFFERENCE BETWEEN WHAT YOU
    GET ILLEGALLY (even if you buy the best chemicals
    off the net and make it yourself) than what you
    get when XYREM is shipped to your door. And drinking
    straight GBL, I won’t even go there. I could write
    10 pages of my experience. Having personally used
    real GHB back in the day when it was legal as well
    as all the other forms, in addition to XYREM, I can
    tell you that the difference can be like that of
    a glass of wine and a shot of heroin (especially in
    the area of detox).

    2.) However, XYREM is a drug and a powerful one at
    that.. and like any drug it (can be) habit forming
    and dangerous. I am actually glad it is so expensive
    and controlled know as it’s abuse is greatly reduced.
    (Note to TrinkaP: I believe many here would agree with
    me that your time would be better spent coaching
    young girls on the dangers of alcohol and marijuana
    ina grand way than demonizing a controlled drug
    like XYREM). Far more people will be damaged, abused
    and raped etc from alcohol (something far more
    mainstream) than XYREM or even illegal GHB. Reminds
    me of the ANTI ABORTION crowd LOL! Just using the
    term “pro life”, what a concept all those protest
    and threats… yet the people REALLY making a differnce
    are the ones simply teaching birth control.

    3.) While everyones body chemistry is different, XYREM
    can be so amazing on such a wide variety of levels it
    is extremely impressive. However, it is its impressive
    wide array of applications that leads to its high
    subsceptibility to abuse. For example, the liver
    and kidney toxicity when used 5 days a week or less
    is non existant for me (I have blood tests to prove
    it and I can feel it). The sleep action of the drug
    is very powerful and extremely quick and I agree
    with TrinkaP that the sleep is so intense that if
    one needed to awake it would be a challenge (Note:
    Xyrem is the only drug I know of for sleep that actually
    increases deep sleep rather than just doping one out).
    This is why you don’t feel lethargic when you wake
    up and usually feel refreshed. I have found that
    it works better when you use as small a does as
    possible and use it in conjunction with a small
    amount of powdered calcium magnesium and meltonin.
    In fact, I have it down to where I don’t even
    wake up for a second dose.. this is where is
    works best. I have concluded (along with various
    friends over the years) that it works BETTER
    when you do NOT use it everyday. Every other
    day or 2 days on 1 day off works best. I am
    sure the company doesn’t want to hear this as
    it will cause poeple to use less.

    I am sorry I am out of time.. I would love to
    write more about my feelings on this. In closing
    I will say that Xyrem is not for everyone and
    like all drugs should be used with caution. But
    we don’t want to throw the baby out with the
    bath water as is becoming so common in our
    extremist culture. Will people still get addicted
    to illegal ghb and or XYREM? Yes. Of course,
    just as people will still get addicted to all the other
    drugs out there… the sames drugs that WILL HELP
    far more people than they hurt.

    My best to everyone.

    Andrea

    #120774

    @sleepymoon wrote:

    I find it amusing, since most of us are aware Xyrem is GHB. Seems like we see “GHB” mentioned an awful lot around sleep websites. It is sad that people have abused it and wrecked their lives with it. But they could have done the same with other drugs. The problem is they were using it for the wrong reasons.

    And I betcha almost ANY sleep med could be used as a date rape drug. Ambien might even cause people to go RAPE! I mean, I keep hearing about Ambien-influenced people getting caught driving or doing things they don’t remember. Wanna talk about dangerous drugs? Ambien is at the top of my list. It doesn’t even help people sleep GOOD, like Xyrem does.

    I do think people should look out for signs of depression. Depression can be caused by probably any drug that screws w/your central nervous system. Depression can ruin your days just as badly as pain or sleep deprivation.
    Exactly! Why isn’t alcohol called “the date rape drug”? Xyrem has helped me so much, and could probably do more if it weren’t so tightly regulated.
    Anyway, it’s almost bedtime…just kicking back here enjoying the thought that I will wake up in the morning without the horrible symptoms of narcolepsy. I hope nobody with legitimate need for Xyrem will ever abuse it and ruin their lives. It has such potential to help. My life is so much better now.

    #120776

    Ok, people – I can see how a lot of you need this drug.

    I have severe pain and so far the best medication has been Vioxx (antiflamagistica)
    and Somadril (painkiller affecting the spine). Both are withdrew from the market in this country, since the first caused heart attack and the second made people addicted. I am sorry about it of course since I really nedded these products, Somadril I took out three packages 06 and I still have one left.

    The criteria for a drug to be sold is VERY strict – and it MUST be. I know it is in this country and you have the guidelines from the FDA, I don’t know if it is that strict over there.
    What you call a drug – cop (?!?) what if she was – of corse the manifacturers and monitors of the products need to know what it is used for, and what the use IS – in your cases positive experiences. Although if they get enough rapports of side -effects, they should withdraw it.

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